Expanding PPIE – Patient and Public Involvement and Engagement in Research
Date First Published:
March 9, 2023
Last Updated:
March 9, 2023
Report by:
Charlotte Taylor and Dr Tanya Baron, Senior Clinical Research Nurse, Consultant in Emergency Medicine (Manchester Royal Infirmary, Oxford University Hospitals)
Three-Part Question:
How can we expand [PPIE (patient and public involvement and engagement)] with [improved inclusivity] to [enhance patient directed research]?
Clinical Scenario:
A 78 year old man with chest pain presents to the ED accompanied by his daughter. He is recluctant to wear his hearing aid and is reliant on his daughter to communicate. You wish to be confident in assessing his level of chest pain and wonder if there were tools to get a more accurate pain score direct from the patient
Search Strategy:
The search was carried out using Medline, Social Policy and Practice and Health Service Premium Collection.
Time frame: 2012-2022
Language preference: English
Synonyms used:
Emergency Department, Accident and Emergency, A&E, ED, Emergency Room, ER, Urgent Care, Emergency Medicine, Emergency Care
Patient and public involvement and engagement, stakeholder analysis, feedback, forum, PPIE, expert, advisory group, board, advisor, social responsibility, activity, inclusivity
Time frame: 2012-2022
Language preference: English
Synonyms used:
Emergency Department, Accident and Emergency, A&E, ED, Emergency Room, ER, Urgent Care, Emergency Medicine, Emergency Care
Patient and public involvement and engagement, stakeholder analysis, feedback, forum, PPIE, expert, advisory group, board, advisor, social responsibility, activity, inclusivity
Search Details:
Searches:
1 ((patient and public involvement and engagement) or PPIE).ti,ab. (28)
2 (patient and public involvement and engagement).mp. [mp=abstract, title, publication type, heading word, accession number] (29)
3 1 or 2 (29)
4 Emergency Department*.ti,ab. (454)
5 (Accident and Emergency).ti,ab. (275)
6 (A&E or ED).ti,ab. (628)
7 (Emergency Room, or ER).ti,ab. (104)
8 Urgent Care.ti,ab. (61)
9 (Emergency and (Medicine or care)).ti,ab. (1202)
10 ((Patient* or public) and (involvement or engagement)).ti,ab. (2995)
11 3 or 10 (2995)
12 4 or 5 or 6 or 7 or 8 or 9 (1981)
13 inclusive.ti,ab. (2614)
14 patient* focus* research priorit*.ti,ab. (0)
15 13 or 14 (2614)
16 11 and 12 and 15 (0)
17 11 or 15 (5545)
18 12 and 17 (48)
19 stakeholder analysis.ti,ab. (6)
20 feedback.ti,ab. (2539)
21 forum*,ti,ab.mp. [mp=abstract, title, publication type, heading word, accession number] (0)
22 13 or 14 or 19 or 20 or 21 (5127)
23 11 and 12 and 22 (4)
24 11 or 22 (8003)
25 12 and 24 (78)
26 3 or 25 (107)
1 ((patient and public involvement and engagement) or PPIE).ti,ab. (28)
2 (patient and public involvement and engagement).mp. [mp=abstract, title, publication type, heading word, accession number] (29)
3 1 or 2 (29)
4 Emergency Department*.ti,ab. (454)
5 (Accident and Emergency).ti,ab. (275)
6 (A&E or ED).ti,ab. (628)
7 (Emergency Room, or ER).ti,ab. (104)
8 Urgent Care.ti,ab. (61)
9 (Emergency and (Medicine or care)).ti,ab. (1202)
10 ((Patient* or public) and (involvement or engagement)).ti,ab. (2995)
11 3 or 10 (2995)
12 4 or 5 or 6 or 7 or 8 or 9 (1981)
13 inclusive.ti,ab. (2614)
14 patient* focus* research priorit*.ti,ab. (0)
15 13 or 14 (2614)
16 11 and 12 and 15 (0)
17 11 or 15 (5545)
18 12 and 17 (48)
19 stakeholder analysis.ti,ab. (6)
20 feedback.ti,ab. (2539)
21 forum*,ti,ab.mp. [mp=abstract, title, publication type, heading word, accession number] (0)
22 13 or 14 or 19 or 20 or 21 (5127)
23 11 and 12 and 22 (4)
24 11 or 22 (8003)
25 12 and 24 (78)
26 3 or 25 (107)
Outcome:
OVID results: 107
MEDLINE results: 140
1 study addressed the question
MEDLINE results: 140
1 study addressed the question
Relevant Paper(s):
| Study Title | Patient Group | Study type (level of evidence) | Outcomes | Key results | Study Weaknesses |
|---|---|---|---|---|---|
| Patient and public involvement in emergency care research. Hirst E, Irving A, Goodacre S. 2016 UK | Concept Article | Reflected upon the PPIE used in 14 Emergency Department and Pre-Hospital studies. Reflected upon the formulation of an Emergency Care Forum and the challenges that it has faced. | Recommends PPIE be included when priority setting in research with other professional and charitable organisations. | Concept article that mostly opinion based. Limited number of studies reflected on. |
Author Commentary:
Several studies found during the literature search linked to the topic but did not directly address the identified question. These included studies that used PPIE methods in ED such as focus groups. One study reflected upon PPIE in setting priorities for Cochrane Reviews. There were also two articles that covered specific inclusive PPIE methods, both studies were based in the USA and were specific to HIV and one for veteran inclusion.
And finally, a study was reflecting on PPIE method changes in COVID but again, not specific to ED.
And finally, a study was reflecting on PPIE method changes in COVID but again, not specific to ED.
Bottom Line:
The literature search has failed to identity an adequate number of studies to answer the question and further research is needed.
References:
- Hirst E, Irving A, Goodacre S. . Patient and public involvement in emergency care research.